Friday, June 14, 2013

Lucy checkup update!

We had a follow-up appointment in Madison at the American Families Children's Hospital for Lucy today, to have another ultrasound on the bulge in her stomach, and to talk with Dr. Nichol about the results.  The ultrasound was super early for Lucy (as in 9:50am), so she was less than thrilled about getting probed.

Dr. Nichol then came in and checked Lucy out.  We haven't seen him since he did Lucy's g-tube/nissen when she was 5 months old, and he was shocked at how tall she was :)  Really, when we tell people her age, everyone is.  Anyway, he felt around on her tummy, and said that the lump was for sure an ovary.  He discussed the results with the radiologist, and there is nothing abnormal about it.  He also explained the reason that it is more pronounced when Lucy is trying to relieve herself - her insides are contracting.  If someone would have just explained that to me in the beginning, I would have been more inclined to believe it was actually Lucy's innards I was feeling, and not a giant blockage!  But now we know, so that's good.  And everything is okay, which is even better.

I got a wild hair when we got back, and decided to rip apart and wash down a playhouse that was gifted to Lucy by a very special friend a couple of years ago; Brianna also has SMA, and was very generous in giving Lucy the playhouse that she had grown out of.  Since it's so hard for me to get Lucy in our backyard by myself during the day, and our deck isn't particularly structurally sound enough to have such a large and heavy toy on it, we haven't gotten much use of it, and that is a shame, since it's perfect for Lucy!  I've been inspired by Pinterest, and decided to give it a makeover so that when Lucy gets her new doll for her birthday, they will have a place to play.  We are going to bring it indoors, so she can play with it in the summer when it's too hot to go out, and in the winter, when we are on lockdown.  I may be more excited than she is!

Hopefully by the end of the weekend, I will have some "after" pictures to show you!

We are coming into the home stretch before our Links for Lucy golf outing and dinner.  Attendance is looking minimal, but every dollar helps, and we are so grateful for the donations, the hole sponsors, and for those who will be joining us at the event.  We are very blessed to have some extra special people in our lives!  You can still register to join us, either for golf and dinner, or just dinner - email me at